Tuesday, January 12, 2016

Model System Researchers to Present at the Annual Meeting of the American Burn Association

Model System researchers will participate in the 48th Annual Meeting of the American Burn Association (ABA) in Las Vegas, Nevada on May 3-6, 2016. The list of participants who have submitted conference presentation information and abstracts can be found below.
 
Northwest Regional Burn Model System
  • Callie Thompson, MD to present Patient Reported Outcomes and Return to Work in Individuals with Pre-Burn Injury Drug or Alcohol Abuse - oral presentation on Thursday, May 5, 2016 at 10:00 am.
  • Sabina Brych, BS to present An Intervention Bundle to Facilitate Return-To-Work for Burn-Injured Workers - oral presentation on Thursday, May 5, 2016 at 10:30am.
  • Shelley Wiechman, PhD to present Trajectories of Physical Health-Related Quality of Life in Adults Following Burn Injuries – oral presentation on Thursday, May 5, 2016 at 10:15am.
  • Dr. Wiechman will also present The Use of Growth Mixture Modeling to Determine Trajectories of Mental Health in Adults with Burn Injuries – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Gretchen Carrougher MN, RN to present Use of Best Practices to Improve Longitudinal Study Participation: Analysis of Telephone Contact Data - poster presentation on Thursday, May 5, 2016 (professor rounds 12:30-1:30pm).
Boston-Harvard Burn Injury Model System
  • Indranil Sinha, MD to present Long-term Patient Reported Outcomes in Head and Neck Burn Patients: A Burn Model System National Database Study - oral presentation on Friday, May 6, 2016 at 10:00 am.
  • Nicholas Faoro, RN to present Geographic Influences on Social Re-integration after Burn Injury: A Burn Model System National Database Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Jeremy Goverman, MD to present The Presence of Scarring in the Burn Model System National Database: Risk Factors and Psychosocial Implications – oral presentation on Thursday, May 5, 2016 at 10:00 am.
  • Dr. Goverman will also present Satisfaction with Life after Burn: A Burn Model System National Database Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 – 1:30 pm).
  • Jeffrey Schneider, MD to present, Development of a Heterotopic Ossification Scoring System: A Burn Model System National Database Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 - 1:30 pm).
  • Matthew Godleski, MD to present Contracture Severity Benchmarks at Hospital Discharge: A Burn Model System National Database Study - plenary presentation on Friday, May 6, 2016 at 8:30am.
  • Laura C. Simko, BS to present, The Impact of Burn Injury on Relating with Strangers: A Life Impact Burn Recovery Evaluation (LIBRE) Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 –1:30pm).
  • Vivian Shie, BS to present, The Impact of Work-Related Injury on Employment Reintegration Outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 – 1:30pm).
  • Sara Cartwright, MD to present, Burn Survivors Injured as Children Exhibit Resilience in Long-Term Community Integration Outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 – 1:30pm).
  • Colleen M. Ryan, MD to present, The Effects of Burn Size on Long-Term Community Reintegration Outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) Study – plenary presentation on Friday, May 6, 2016 at 9:15am.
  • Gabriel Shapiro, PhD to present, Factor Structure of the Life Impact Burn Recovery Evaluation Questionnaire (LIBRE – 192) – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 – 1:30pm).
  • Jeremy Goverman, MD to present, Psychosocial Outcomes 10 Years Post-Burn: A Life Impact Burn Recovery Evaluation (LIBRE) Study – oral presentation on Friday, May 6, 2016 at 11:45am.
  • John T. Schulz III, MD to present, The Impact of Education on Quality of Burn Survival: A Life Impact Burn Recovery Evaluation (LIBRE) Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 – 1:30pm).
  • James Jeng, MD to present, Impact of Burns on Family Function: A Life Impact Burn Recovery Evaluation (LIBRE) Study – poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 – 1:30pm).
  • Brian Grieve, BA to present, Assessment of the Role of Peer Support Groups in psychosocial recovery from burn injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study – oral presentation on Thursday, May 5 at 10:00am.
  • Benjamin Levi, MD to present, The Impact of Gender on Long-Term Community Reintegration Following Burn Injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study – oral presentation on Wednesday, May 4, 2016 at 10:15am.
Burn Model System National Data and Statistical Center
  • Dagmar Amtmann, PhD to present The Psychometric Properties of the Satisfaction with Life Scale in People with Traumatic Injury - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30 - 1:30pm).
University Texas Medical Branch/Shriner's Hospitals Children Galveston Burn Model System
  • Ashley Guillory, PhD to present Propranolol Kinetics in Severely Burned Pediatric Patients with or Without Oxandrolone Co-Administration - oral presentation on Wednesday, May 4, 2016 at 11:45 am.
  • Craig Porter, PhD to present Rehabilitative Exercise Training Increases Whole-Body and Skeletal Muscle Oxidative Capacity in Pediatric Burn Victims - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Guillermo Foncerrada, MD to present Functional Exercise Capacity in Children with Electrical Burns and Prolonged Myoglobinemia - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Dipen Patel, BS to present A Multi-Center Investigation of Psychosocial Distress in Young Children up to Two Years Post Burn - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Dipen Patel, BS to present Satisfaction with Appearance in Young Children at 5 and 10 Years Post-Burn - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Charles Voigt, MD to present Increased Weight Does Not Impact Post-Burn Distress in Children - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Gurjit Singh, MS to present Assessment of Total Energy Expenditure and Its Components in Pediatric Burn Injury Patients After Discharge from Acute Care - poster presentation on Wednesday, May 4, 2016 (professor rounds 12:30-1:30pm).
  • Paul Wurzer, MD to present Oxandrolone with Propranolol Decrease Cardiac Stress in Burned Children – oral presentation on Thursday, May 5, 2016 at 10:45 am.
  • Raquel Peña, MD to present The Effects of a Community-Based Exercise Program on Mental Health in Severely Burned Children – oral presentation on Thursday, May 5, 2016 at 11:30 am.
  • Paul Wurzer, MD to present A 12-Week Exercise Program After Acute Hospitalization Is Beneficial, but Are Benefits Present 2 Years Post Burn? – oral presentation on Friday, May 6, 2016 at 10:45 am.
North Texas Burn Rehabilitation Model System
  • Radha Holavanahalli, PhD to present Disparities in Self-Reported Outcomes Among Racial and Ethnic Minority Groups Following a Major Burn Injury - oral presentation on Friday, May 6, 2016 at 11:30 am.

Using Social Media to Promote your Research: MSKTC Suite of Tools and Information

MSKTC produced a webinar titled Using Social Media to Promote Your Research; a recording of the webinar is available here: http://www.msktc.org/Model-Systems-Grantees/webinars. This webinar was designed to help the attendees understand the pervasiveness of social media; understand who uses social media; learn about the uses for different social media platforms; think about what they can do with social media; learn about the steps needed to manage social media; and see how a few Model Systems are effectively using their own social media. As a follow up to this webinar, researchers can develop a social media strategic plan using the following three tools developed by the MSKTC:

  • Guide for Developing an MSKTC Social Media Plan: This document is a go-to reference for researchers to navigate different social media platforms and to plan, execute, monitor and optimize their social media efforts;
  • MSKTC Social Media Development WorkbookThis workbook accompanies the Guide to help researchers work through all aspects of a social media plan to communicate about their research;
  • MSKTC Social Media Development Content CalendarThis Excel sheet helps researchers map out their use of social media by adapting it to the frequency with which they plan to use social media.
The tools can be found here: http://www.msktc.org/Knowledge-Translation/Social-Media-Guide.

In addition to the webinar and tools developed by MSKTC, a web clinic on social media analytics was held to review the types of analytics available for three platforms: Facebook, Twitter, and Pinterest. Participants discussed how to use that data to inform and improve research dissemination and outreach through social media. The web clinic introduced best practices in using analytics, measuring engagement through analytics, creating data reports, and knowing what questions to ask of the researcher’s organization if they do not manage their own social media platforms. A recording of the web clinic is available here: http://www.msktc.org/Model-Systems-Grantees/webinars.

Friday, December 6, 2013

Burn Model System Recently Held a Lecture Series

Carmen Tarleton, burn survivor and face transplant recipient, was the guest speaker at the Boston-Harvard Burn Injury Model System (BH-BIMS) Lecture Series on November 12, 2013. Injured in 2007 by her estranged ex-husband, Ms. Tarleton was a patient at the Brigham and Women’s Hospital and Spaulding Rehabilitation Hospital The audience, a combination of trauma survivors, healthcare providers and community members, was riveted as she spoke about overcoming adversity and finding happiness, forgiveness and peace. Following her talk, Ms. Tarleton candidly and thoughtfully answered questions posed by the audience and signed copies of her recently published book, Overcome. Visit www.bh-bims.org to learn more about the event.

Friday, November 15, 2013

Are you a caregiver of someone who sustained a burn injury?

Are you the partner, family member, or caregiver of someone who sustained a burn injury in the past five years? Would you like to share your experience in research to help others in the future?

The Model Systems Knowledge Translation Center (MSKTC) is recruiting individuals over 18 years old who are the primary caregivers of someone who sustained a burn injury in the past five years. Participants will participate in an interview about caregivers’ health information needs. Participants will be compensated $20.

The study is funded by the National Institute on Disability and Rehabilitation Research (NIDRR) and conducted by the American Institutes for Research (AIR) and George Mason University. The study has been approved by the Institutional Review Board (IRB) at AIR. If you are interested, please call Mahlet Megra, (202) 403-5531 or email msktc@air.org for more information.

Monday, October 28, 2013

Model Systems Researchers to Present at the 90th Annual American Congress of Rehabilitation Medicine Conference

Model systems researchers will participate in the 90th Annual American Congress of Rehabilitation Medicine Conference in Orlando, Florida from November 12-16, 2013. Allen Heinemann, Ph.D., co-principal investigator of the Midwest Regional Spinal Cord Injury Care System (MRSCICS) will deliver the John Stanley Coulter Award Lecture. The MSKTC will also exhibit at the conference. Stop by booth 204 to meet with MSKTC and learn more about our work.

Participating Model Systems 

Midwest Regional Spinal Cord Injury Care System (MRSCIS) 
Rehabilitation Institute of Chicago, Chicago, IL 
• Allen Heineman and Anne Deutsch will present at the following sessions: New Developments in the SCI-QOL/SCI-FI Measurement System, and Novel Approaches to Clinical Practice Improvement, and Development of a Functional Status Quality Metric.

New England Regional Spinal Cord Injury Center Network 
Boston University Medical Center, Boston, MA 
 • Bethlyn Houlihan MSW, MPH will present a poster titled Healthcare self-advocacy strategies for consumers with spinal cord injury: Qualitative interviews with consumers and professionals.
• Mary D. Slavin PhD, PT will hold a course titled: New Developments in the SCI-QOL/SCI-FI Measurement System The complete faculty listing for this course includes:
     

o David Tulsky, PhD, Director, Center for Rehabilitation Outcomes & Assessment Research, Director of Research, Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor, MI

o Pamela Kisala, MA, Senior Research Associate, Center for Rehabilitation Outcomes & Assessment Research, Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor, MI;

o Mary D. Slavin, PhD, PT, Director, Education and Dissemination, Health and Disability Research Institute, Boston University School of Public Health, Boston, MA o Allen Heinemann, PhD, Professor, Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University and Director, Center for Rehabilitation Outcomes Research, Rehabilitation Institute of Chicago, Chicago, IL

Wednesday, September 18, 2013

Model System Researchers Present at the 2013 Phoenix Society World Burn Congress

Burn model systems researchers will participate in the 2013 Phoenix Society’s Annual World Burn Congress in Providence, RI from October 9-12, 2013. Additionally, the MSKTC will exhibit at the upcoming 2013 Phoenix Society’s Annual World Burn Congress. During this event, MSKTC staff will display and highlight the work of the Burn Injury Model System and the MSKTC. A list of model systems researchers that participated in the conference can be found below:

Participating Burn Injury Model Systems


Boston-Harvard Burn Injury Model System
Spaulding Rehabilitation Hospital │ Massachusetts General Hospital │Shriners Hospital for Children – Boston

Researchers listed below will participate in a panel discussion titled: “Ask A Physician” moderated by Dr. David Greenhalgh (Shriners Sacramento)

  • Dr. Jeffrey Schneider- will discuss the rehab of the burn patient and the long term challenges 
  • Dr. Matthias Donelan–will discuss scar revision and laser technology 
  • Dr. Robert Sheridan –will discuss scar revision and laser technology 
  • Dr. Curtis Cetrulo – will discuss transplants 

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Wednesday, June 26, 2013

Burn Model System hosting a Panel Discussion

The Boston-Harvard Burn Injury Model System hosted a panel discussion about facing trauma and the road to recovery and renewal. Entitled, Reintegration after Burn Injury and Severe Trauma: Experiences and Strategies for Personal and Family Recover, this presentation featured survivors and be located at Shriners Hospital for Children-Boston. The presentation welcomed back Carrie Holmstrom, a young woman who at 16 survived a horrible auto accident; Brian Meyer, a Marine Gunnery Sergeant who survived a bomb blast during his third deployment in Afghanistan; Muji Karim, a young man who also survived an auto crash with his brother; and Diana Tenney and Jerry LaPerriere, who sustained serious injuries while burning yard waste at their home. A video of the presentation will be available on the website.