Friday, December 6, 2013

Burn Model System Recently Held a Lecture Series

Carmen Tarleton, burn survivor and face transplant recipient, was the guest speaker at the Boston-Harvard Burn Injury Model System (BH-BIMS) Lecture Series on November 12, 2013. Injured in 2007 by her estranged ex-husband, Ms. Tarleton was a patient at the Brigham and Women’s Hospital and Spaulding Rehabilitation Hospital The audience, a combination of trauma survivors, healthcare providers and community members, was riveted as she spoke about overcoming adversity and finding happiness, forgiveness and peace. Following her talk, Ms. Tarleton candidly and thoughtfully answered questions posed by the audience and signed copies of her recently published book, Overcome. Visit www.bh-bims.org to learn more about the event.

Friday, November 15, 2013

Are you a caregiver of someone who sustained a burn injury?

Are you the partner, family member, or caregiver of someone who sustained a burn injury in the past five years? Would you like to share your experience in research to help others in the future?

The Model Systems Knowledge Translation Center (MSKTC) is recruiting individuals over 18 years old who are the primary caregivers of someone who sustained a burn injury in the past five years. Participants will participate in an interview about caregivers’ health information needs. Participants will be compensated $20.

The study is funded by the National Institute on Disability and Rehabilitation Research (NIDRR) and conducted by the American Institutes for Research (AIR) and George Mason University. The study has been approved by the Institutional Review Board (IRB) at AIR. If you are interested, please call Mahlet Megra, (202) 403-5531 or email msktc@air.org for more information.

Monday, October 28, 2013

Model Systems Researchers to Present at the 90th Annual American Congress of Rehabilitation Medicine Conference

Model systems researchers will participate in the 90th Annual American Congress of Rehabilitation Medicine Conference in Orlando, Florida from November 12-16, 2013. Allen Heinemann, Ph.D., co-principal investigator of the Midwest Regional Spinal Cord Injury Care System (MRSCICS) will deliver the John Stanley Coulter Award Lecture. The MSKTC will also exhibit at the conference. Stop by booth 204 to meet with MSKTC and learn more about our work.

Participating Model Systems 

Midwest Regional Spinal Cord Injury Care System (MRSCIS) 
Rehabilitation Institute of Chicago, Chicago, IL 
• Allen Heineman and Anne Deutsch will present at the following sessions: New Developments in the SCI-QOL/SCI-FI Measurement System, and Novel Approaches to Clinical Practice Improvement, and Development of a Functional Status Quality Metric.

New England Regional Spinal Cord Injury Center Network 
Boston University Medical Center, Boston, MA 
 • Bethlyn Houlihan MSW, MPH will present a poster titled Healthcare self-advocacy strategies for consumers with spinal cord injury: Qualitative interviews with consumers and professionals.
• Mary D. Slavin PhD, PT will hold a course titled: New Developments in the SCI-QOL/SCI-FI Measurement System The complete faculty listing for this course includes:
     

o David Tulsky, PhD, Director, Center for Rehabilitation Outcomes & Assessment Research, Director of Research, Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor, MI

o Pamela Kisala, MA, Senior Research Associate, Center for Rehabilitation Outcomes & Assessment Research, Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor, MI;

o Mary D. Slavin, PhD, PT, Director, Education and Dissemination, Health and Disability Research Institute, Boston University School of Public Health, Boston, MA o Allen Heinemann, PhD, Professor, Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University and Director, Center for Rehabilitation Outcomes Research, Rehabilitation Institute of Chicago, Chicago, IL

Wednesday, September 18, 2013

Model System Researchers Present at the 2013 Phoenix Society World Burn Congress

Burn model systems researchers will participate in the 2013 Phoenix Society’s Annual World Burn Congress in Providence, RI from October 9-12, 2013. Additionally, the MSKTC will exhibit at the upcoming 2013 Phoenix Society’s Annual World Burn Congress. During this event, MSKTC staff will display and highlight the work of the Burn Injury Model System and the MSKTC. A list of model systems researchers that participated in the conference can be found below:

Participating Burn Injury Model Systems


Boston-Harvard Burn Injury Model System
Spaulding Rehabilitation Hospital │ Massachusetts General Hospital │Shriners Hospital for Children – Boston

Researchers listed below will participate in a panel discussion titled: “Ask A Physician” moderated by Dr. David Greenhalgh (Shriners Sacramento)

  • Dr. Jeffrey Schneider- will discuss the rehab of the burn patient and the long term challenges 
  • Dr. Matthias Donelan–will discuss scar revision and laser technology 
  • Dr. Robert Sheridan –will discuss scar revision and laser technology 
  • Dr. Curtis Cetrulo – will discuss transplants 

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Wednesday, June 26, 2013

Burn Model System hosting a Panel Discussion

The Boston-Harvard Burn Injury Model System hosted a panel discussion about facing trauma and the road to recovery and renewal. Entitled, Reintegration after Burn Injury and Severe Trauma: Experiences and Strategies for Personal and Family Recover, this presentation featured survivors and be located at Shriners Hospital for Children-Boston. The presentation welcomed back Carrie Holmstrom, a young woman who at 16 survived a horrible auto accident; Brian Meyer, a Marine Gunnery Sergeant who survived a bomb blast during his third deployment in Afghanistan; Muji Karim, a young man who also survived an auto crash with his brother; and Diana Tenney and Jerry LaPerriere, who sustained serious injuries while burning yard waste at their home. A video of the presentation will be available on the website.

Monday, May 20, 2013

Model System Treats Patients Following the Boston Marathon Tragedy

Boston Harvard Burn Injury Model System experts treated patients after the bombings at the Boston Marathon. At least 10 Boston area hospitals treated more than 170 patients following the bombings at the Boston Marathon on Monday, April 15, 2013. At Massachusetts General Hospital, a 34-year-old man is the last bombing victim remaining and among a few of the most seriously injured in the attack not yet released from other hospitals or transferred to rehabilitation facilities. There were several Boston Marathon bombing victims that were treated at Spaulding Rehabilitation Hospital, another BH-BIMS institution, right as the hospital prepared to relocate to a brand-new facility within days of the bombing. Spaulding continues to work with several patients, taking a team approach to rapidly restore function to each person based on their needs and to provide them with a sense of independence early on, addressing both their physical and psychological concerns.

Thursday, May 9, 2013

University of Washington is awarded the Burn Model Systems National Data and Statistical Center

The MSKTC congratulates the University of Washington on being awarded the Burn Model Systems National Data and Statistical Center. The new BMS database staff includes Dagmar Amtmann, PhD: Principal Investigator, Kurt Johnson, PhD: Co-Principal Investigator, Mark Harniss, PhD: Co-Investigator, Peter Esselman, PhD: Co-Investigator, Jeff Witzel, BS: Senior Computer Specialist, Kara McMullen, MPH: Project Manager, Rebecca Matter, MS: Evaluation Specialist. For any comments and questions please email burndata@uw.edu.