Friday, December 6, 2013

Burn Model System Recently Held a Lecture Series

Carmen Tarleton, burn survivor and face transplant recipient, was the guest speaker at the Boston-Harvard Burn Injury Model System (BH-BIMS) Lecture Series on November 12, 2013. Injured in 2007 by her estranged ex-husband, Ms. Tarleton was a patient at the Brigham and Women’s Hospital and Spaulding Rehabilitation Hospital The audience, a combination of trauma survivors, healthcare providers and community members, was riveted as she spoke about overcoming adversity and finding happiness, forgiveness and peace. Following her talk, Ms. Tarleton candidly and thoughtfully answered questions posed by the audience and signed copies of her recently published book, Overcome. Visit www.bh-bims.org to learn more about the event.

Friday, November 15, 2013

Are you a caregiver of someone who sustained a burn injury?

Are you the partner, family member, or caregiver of someone who sustained a burn injury in the past five years? Would you like to share your experience in research to help others in the future?

The Model Systems Knowledge Translation Center (MSKTC) is recruiting individuals over 18 years old who are the primary caregivers of someone who sustained a burn injury in the past five years. Participants will participate in an interview about caregivers’ health information needs. Participants will be compensated $20.

The study is funded by the National Institute on Disability and Rehabilitation Research (NIDRR) and conducted by the American Institutes for Research (AIR) and George Mason University. The study has been approved by the Institutional Review Board (IRB) at AIR. If you are interested, please call Mahlet Megra, (202) 403-5531 or email msktc@air.org for more information.

Monday, October 28, 2013

Model Systems Researchers to Present at the 90th Annual American Congress of Rehabilitation Medicine Conference

Model systems researchers will participate in the 90th Annual American Congress of Rehabilitation Medicine Conference in Orlando, Florida from November 12-16, 2013. Allen Heinemann, Ph.D., co-principal investigator of the Midwest Regional Spinal Cord Injury Care System (MRSCICS) will deliver the John Stanley Coulter Award Lecture. The MSKTC will also exhibit at the conference. Stop by booth 204 to meet with MSKTC and learn more about our work.

Participating Model Systems 

Midwest Regional Spinal Cord Injury Care System (MRSCIS) 
Rehabilitation Institute of Chicago, Chicago, IL 
• Allen Heineman and Anne Deutsch will present at the following sessions: New Developments in the SCI-QOL/SCI-FI Measurement System, and Novel Approaches to Clinical Practice Improvement, and Development of a Functional Status Quality Metric.

New England Regional Spinal Cord Injury Center Network 
Boston University Medical Center, Boston, MA 
 • Bethlyn Houlihan MSW, MPH will present a poster titled Healthcare self-advocacy strategies for consumers with spinal cord injury: Qualitative interviews with consumers and professionals.
• Mary D. Slavin PhD, PT will hold a course titled: New Developments in the SCI-QOL/SCI-FI Measurement System The complete faculty listing for this course includes:
     

o David Tulsky, PhD, Director, Center for Rehabilitation Outcomes & Assessment Research, Director of Research, Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor, MI

o Pamela Kisala, MA, Senior Research Associate, Center for Rehabilitation Outcomes & Assessment Research, Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor, MI;

o Mary D. Slavin, PhD, PT, Director, Education and Dissemination, Health and Disability Research Institute, Boston University School of Public Health, Boston, MA o Allen Heinemann, PhD, Professor, Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University and Director, Center for Rehabilitation Outcomes Research, Rehabilitation Institute of Chicago, Chicago, IL

Wednesday, September 18, 2013

Model System Researchers Present at the 2013 Phoenix Society World Burn Congress

Burn model systems researchers will participate in the 2013 Phoenix Society’s Annual World Burn Congress in Providence, RI from October 9-12, 2013. Additionally, the MSKTC will exhibit at the upcoming 2013 Phoenix Society’s Annual World Burn Congress. During this event, MSKTC staff will display and highlight the work of the Burn Injury Model System and the MSKTC. A list of model systems researchers that participated in the conference can be found below:

Participating Burn Injury Model Systems


Boston-Harvard Burn Injury Model System
Spaulding Rehabilitation Hospital │ Massachusetts General Hospital │Shriners Hospital for Children – Boston

Researchers listed below will participate in a panel discussion titled: “Ask A Physician” moderated by Dr. David Greenhalgh (Shriners Sacramento)

  • Dr. Jeffrey Schneider- will discuss the rehab of the burn patient and the long term challenges 
  • Dr. Matthias Donelan–will discuss scar revision and laser technology 
  • Dr. Robert Sheridan –will discuss scar revision and laser technology 
  • Dr. Curtis Cetrulo – will discuss transplants 

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Wednesday, June 26, 2013

Burn Model System hosting a Panel Discussion

The Boston-Harvard Burn Injury Model System hosted a panel discussion about facing trauma and the road to recovery and renewal. Entitled, Reintegration after Burn Injury and Severe Trauma: Experiences and Strategies for Personal and Family Recover, this presentation featured survivors and be located at Shriners Hospital for Children-Boston. The presentation welcomed back Carrie Holmstrom, a young woman who at 16 survived a horrible auto accident; Brian Meyer, a Marine Gunnery Sergeant who survived a bomb blast during his third deployment in Afghanistan; Muji Karim, a young man who also survived an auto crash with his brother; and Diana Tenney and Jerry LaPerriere, who sustained serious injuries while burning yard waste at their home. A video of the presentation will be available on the website.

Monday, May 20, 2013

Model System Treats Patients Following the Boston Marathon Tragedy

Boston Harvard Burn Injury Model System experts treated patients after the bombings at the Boston Marathon. At least 10 Boston area hospitals treated more than 170 patients following the bombings at the Boston Marathon on Monday, April 15, 2013. At Massachusetts General Hospital, a 34-year-old man is the last bombing victim remaining and among a few of the most seriously injured in the attack not yet released from other hospitals or transferred to rehabilitation facilities. There were several Boston Marathon bombing victims that were treated at Spaulding Rehabilitation Hospital, another BH-BIMS institution, right as the hospital prepared to relocate to a brand-new facility within days of the bombing. Spaulding continues to work with several patients, taking a team approach to rapidly restore function to each person based on their needs and to provide them with a sense of independence early on, addressing both their physical and psychological concerns.

Thursday, May 9, 2013

University of Washington is awarded the Burn Model Systems National Data and Statistical Center

The MSKTC congratulates the University of Washington on being awarded the Burn Model Systems National Data and Statistical Center. The new BMS database staff includes Dagmar Amtmann, PhD: Principal Investigator, Kurt Johnson, PhD: Co-Principal Investigator, Mark Harniss, PhD: Co-Investigator, Peter Esselman, PhD: Co-Investigator, Jeff Witzel, BS: Senior Computer Specialist, Kara McMullen, MPH: Project Manager, Rebecca Matter, MS: Evaluation Specialist. For any comments and questions please email burndata@uw.edu.

Friday, April 19, 2013

Upcoming Narrated Slideshow from MSKTC

The MSKTC will be releasing a narrated slideshow on Social Interaction After Burn Injury. Many burn injury survivors who have had a change in their physical appearance feel anxious about how people will react to them. This slideshow will inform you on strategies for improving social interactions.

Thursday, April 11, 2013

Model System Researchers will Present at the American Burn Association 45th Annual Meeting

A host of burn model systems researchers will be participating in the 2013 ABA 45th Annual Meeting in Palm Springs, California from April 23-26, 2013. Mary Elizabeth Murphy of the Pediatric Burn Injury Rehabilitation Model System will be acknowledged as this year’s ABA student scholarship recipient. Additionally, numerous model systems researchers will present papers and deliver lectures to advance the field of burn injury. Information about these presentations can be found in the conference website. A list of model systems researchers that will be participating in the conference can be found below:

Participating Burn Injury Model Systems
Boston-Harvard Burn Injury Model System
Spaulding Rehabilitation Hospital, Boston, MA

·         Colleen Ryan, MD, will moderate the following sessions: Plenary Session:  The Organization and Delivery of Burn Care Committee - What's in a name? and Poster Session: Burn Prevention.
·         Colleen Ryan, MD, Jeffrey Schneider, MD, and Dr. Ross Zafonte, DO, will present the poster titled Burn Readmissions Have Worse Outcomes than Patients with a Single Inpatient Rehabilitation Admission and Validation of the FIM in Burn Patients at Inpatient Rehabilitation Facilities.
·         Colleen Ryan, MD, Jeffrey Schneider, MD, and Felipe Fregni, MD, PhD, MPH, will present the poster titled Chronic Pain Following Physical and Emotional Trauma: The Station Nightclub Fire.
·         Colleen Ryan, MD, will present the poster titled Five Year Experience with Burns from Glass Fireplace Doors in the Pediatric Population.
·         Jeffrey Schneider, MD and Felipe Fregni, MD, PhD, MPH, will present the poster titled Chronic Pain Following Physical and Emotional Trauma: The Station Nightclub Fire.
·         Jeffrey Schneider, MD, will present the poster titled Rehabilitation Workshop: Turning practice into research – making the research process friendly for every burn clinician.
·         Ronald G. Tompkins, MD, will present the poster titled Role of Protein Farnesylation in Burn-Induced Metabolic Derangements and Insulin Resistance in Mouse Skeletal Muscle and Simvastatin Reduces Burn Induced Splenic Lymphocyte Apoptosis via Suppressing TNF-α Expression in Mice.
·         Ronald G. Tompkins, MD, will present the poster title Mouse Transcriptone Array (MJAY) Study of the Genomic Effects of SS31 in Muscle after Burn Injury, Post Translational Modification (PTM) of Nuclear Binding Protein FOXO3 in Relation to Insulin Resistance and Muscle Wasting after Burn Injury and Relative Contribution of Hepatic Glucose Production and Peripheral Glucose Uptake to Postburn Hyperglycemia in Rats.



Pediatric Burn Injury Rehabilitation Model System
Shriners Burns Hospital, Galveston, TX

·         Mary Elizabeth Murphy will present on Long Term Quality of Life of Pediatric Burn Survivors Using the WHODAS II and Long Term Quality of Life of Burn Survivors Using Burn Specific Health Scale Brief.

Wednesday, March 27, 2013

Model System Launches New Website and Plans for Relocation

The Boston-Harvard Burn Injury Model System has launched their website. It offers a wide variety of resources about care, support, and research to meet the needs of burn survivors and clinicians. In April, Spaulding Rehabilitation Hospital will move to its new state-of-the-art, LEED certified, rehabilitative care and research space in Charlestown, MA. Learn more about the new Spaulding Rehabilitation Hospital.

Tuesday, March 19, 2013

Visit our Website for Resources on Burn Injury!

The MSKTC focuses on developing tools and consumer products in order to assist and enhance knowledge about traumatic brain injury, spinal cord injuty and burn injury. Please visit the website to get more information on burn injury!

Thursday, March 7, 2013

Model Systems Researchers Work Published in the New England Journal of Medicine

Drs. Jeffrey Schneider, Robert Sheridan, Shawn Fagan and Frederick Stoddard of the Boston-Harvard Burn Injury Model System (BH-BIMS) co-authored a case report published in the New England Journal of Medicine titled Case 36-2012 — Recovery of a 16-Year-Old Girl from Trauma and Burns after a Car Accident. This article highlights the collaboration among clinicians of various disciplines to address the multidisciplinary needs of a patient who survived massive multisystem injuries including a 70% total body surface area burn, inhalation injury and amputations. With community reintegration as the ultimate goal, Dr. Jeffrey Schneider, Program Director of BH-BIMS, discusses the multistage rehabilitation process needed to recover from such a complex injury. View the case report here.

Monday, February 25, 2013

We Need Your Help

The Model Systems Knowledge Translation Center (MSKTC) works closely with Burn Injury Model Systems (BIMS) researchers to develop consumer information that is meaningful and useful to individuals with burn injuries. Consumer information materials undergo expert and consumer reviews to ensure they are up-to-date, evidence-based, and consumer-friendly.

Now we need your help!

We are currently in need of images that depict a burn injury for our narrated slideshows, please email them to kmckenzie@air.org.


Thank You

Monday, February 11, 2013

Model Systems Researchers Work Published in the New England Journal of Medicine

Drs. Jeffrey Schneider, Robert Sheridan, Shawn Fagan and Frederick Stoddard of the Boston-Harvard Burn Injury Model System (BH-BIMS) co-authored a case report published in the New England Journal of Medicine titled Case 36-2012 — Recovery of a 16-Year-Old Girl from Trauma and Burns after a Car Accident. This article highlights the collaboration among clinicians of various disciplines to address the multidisciplinary needs of a patient who survived massive multisystem injuries including a 70% total body surface area burn, inhalation injury and amputations. With community reintegration as the ultimate goal, Dr. Jeffrey Schneider, Program Director of BH-BIMS, discusses the multistage rehabilitation process needed to recover from such a complex injury. View the case report here.

Thursday, January 31, 2013

Burn Model Systems Present Research on Itching After a Burn Injury

A new article from the Burn Injury Model Systems titled Pruritus in Adult Burn Survivors: Postburn Prevalence and Risk Factors Associated With Increased Intensity appears in the January/February 2013 issue of the Journal of Burn Care & Research. The article examines the prevalence of itching (pruritus) and related risk factors following a burn injury in survivors up to 10 years after their date of injury. The impact of postburn itching on leisure, work, and sleep are discussed. See the abstract for more information.

Thursday, January 24, 2013

Model Systems Researchers Invited To Speak at the American Burn Association Partnership Conference

Dr. Peter Esselman from the Northwest Regional Burn Model System will speak on Quality of Life after a Burn Injury at the upcoming 2013 American Burn Association Partnership Conference on February 12, 2013, in Washington, DC. He will be joined by Dr. Jeffrey Schneider from the Boston-Harvard Burn Injury Model System. Together, Drs. Esselman and Schneider will lead a round table discussion concerning quality-of-life issues for burn survivors. See the conference brochure for more information.

Friday, January 18, 2013

Model Systems Researcher Featured in Article Published in Harvard Medicine

The MSKTC congratulates Dr. Jeffrey Schneider from the Boston-Harvard Burn Injury Model System on being featured in the Harvard Medicine article Surface Tension: New Techniques, Technologies Offer Balm for the Wounds of Those Burned. This article highlights Dr. Schneider’s research using robotic and video-gaming technology in burn rehabilitation. In addition, the article discusses the power of portrait paintings of burn survivors. Access the article here.

Monday, January 7, 2013

MSKTC Is Recruiting Consumers with Burn Injury for Fact Sheet Testing

Northwest Regional Burn Model System and the MSKTC are collaborating on a new fact sheet entitled Itchy Skin After Burn Injury. The MSKTC is recruiting individuals with burn injury and their family members to test the fact sheet. Please click here and e-mail msktc@air.org for additional information.